I’m not good in a crisis. In my dreams, I’m this incredibly courageous woman who leaps tall buildings, laughing and bubbling with confidence. In my fantasies, I am an orator of note; able to express myself elegantly with witty wisdoms that make everyone shake their head in awe and agreement. In reality, I’m neither. I crumble with anxiety at the merest whiff of uncertainty, I cringe before the specter of responsibility, and I become tongue-tied and dumb with despair when confronted with a conundrum. … More Lesson #33: Crisis? What Crisis?
It’s not easy to share our health woes; there’s so much stigma in our cynical society. If you whine too much, you’re a hypochondriac. If you have something incurable, it’s all in your head. If you have something really wrong with you, you shouldn’t be out in public. Stop coughing and sneezing on us! Stop blocking the aisles with your wheelchair! Stay home, why dontchya? … More Lesson #32: Damned If They Do, Damned If They Don’t
My mother is angry and I don’t blame her. If you were to wake up every day not remembering anything from the day before, if your home of 40 years suddenly looked unfamiliar, if there was a continuous parade of strangers hovering over you and asking you to do things, and if you couldn’t remember simple things like how to swallow a pill… well, most of us would be royally pissed off. … More Lesson #26: No Apologies Necessary
I’m putting myself right out there with other family caregivers today, and admitting that I’ve been fiercely protecting my “me-time” this month… those oh-so-valuable hours when I can push away my worrying, do something positive, take time to recharge, and shrug off the heavy emotions that weigh me down daily. … More Lesson #23: Guilt, Grieving and Giving In
There is so much about caregiving that makes me sad, and looking back is a big one. Mom seems to be moving into an advanced stage of her Alzheimer’s; she has recently become more confused, less willing to get out of bed in the morning, and less connected with reality. She’s having trouble going to the washroom on her own, she struggles with her fork and knife, and her appetite has decreased. Along with her increasing inability to express herself, it’s truly heartbreaking. … More Lesson #16: Look Forward, Stay Present