After Mom died, I began drafting a white paper — working title “Better 4 Beverly” — to detail and communicate my family’s experience in assisting both parents through their dementia journeys. I’m writing it for health care professionals, for government representatives, and for other families who might benefit from the lessons we learned. … More It Took A Pandemic
Family is everything, and (as I’m now learning) family is everywhere. When I first started caregiving for my parents, I was like a baby bird who had toppled out of its nest, huddled in the cold rain at the base of the tree. Lonely. Vulnerable. Uncertain. Two amazing parents who had raised and cared for five children had become aging seniors, both afflicted with a cognitive disorder and in need of daily care themselves. What now? … More Lesson #34: Learn How To Fly
Caregivers are on the front lines of the Alzheimer’s battle. And the battle isn’t about the disease, it’s about the stigma, negativity and fear surrounding it. If you or someone you love has Alzheimer’s, it’s quite likely that you have come up against a lot of ignorance, misconceptions, dread and horror when talking to people about this condition. … More Lesson #30: Less Lies, More Love
My mother is angry and I don’t blame her. If you were to wake up every day not remembering anything from the day before, if your home of 40 years suddenly looked unfamiliar, if there was a continuous parade of strangers hovering over you and asking you to do things, and if you couldn’t remember simple things like how to swallow a pill… well, most of us would be royally pissed off. … More Lesson #26: No Apologies Necessary
We think of love as an emotion. And it can certainly provoke a wide range of emotions, from the all-encompassing rosy glow of romance to the bitter burn of jealousy. But as the pioneering scientist Dr. Masaru Emoto tried to prove (still controversial, but amazing nonetheless), emotions are actually energy, produced in the form of vibrations. … More Lesson #20: Love is a Virus
The other day I walked quickly before a rainfall to secure a lone taxi. I was just behind a man who, as it turned out, also needed the taxi. A rare gentleman, he asked me where I was headed and offered to share his ride. As we awkwardly made small talk in the back seat of the cab, I mentioned that I had moved to the area to care for my parents, both with dementia and Alzheimer’s. … More Lesson #17: Help Help Help!