I’m putting myself right out there with other family caregivers today, and admitting that I’ve been fiercely protecting my “me-time” this month… those oh-so-valuable hours when I can push away my worrying, do something positive, take time to recharge, and shrug off the heavy emotions that weigh me down daily. … More Lesson #23: Guilt, Grieving and Giving In
I became interested in Zach Anner, an up-and-coming YouTube celebrity, because of my friend Christine. She, too, lives life from a wheelchair, diagnosed with cerebral palsy at birth. Currently working on her autobiography, Christine’s memoir opens with “It was lonely being a child in a wheelchair. I was bullied.” In an online interview with Oprah, when asked to identify his biggest challenge, Zach makes a touching admission: “Figuring out that I’m worth this experience, because it’s hard for me to accept that I might deserve this.” … More Lesson #22: The Stink of Stigma
As Joseph Campbell† and countless sages have pointed out, all human fears circle endlessly around the topic of death. Fear of anything is, ultimately, a fear of dying. Whether triggered by spiders, poverty, speaking in public or being alone, it all comes back to a basic fear of being separated from those whom you love and/or that which is most familiar to you, which is life. … More Lesson #21: Death Be Not Shy
Heightened awareness can be a bitch.
You know that feeling, right? A topic starts trending, everyone is talking about it, and before long, it’s “top of mind” in your own little world. … More Lesson #19: You Are What You Eat
The other day I walked quickly before a rainfall to secure a lone taxi. I was just behind a man who, as it turned out, also needed the taxi. A rare gentleman, he asked me where I was headed and offered to share his ride. As we awkwardly made small talk in the back seat of the cab, I mentioned that I had moved to the area to care for my parents, both with dementia and Alzheimer’s. … More Lesson #17: Help Help Help!
My mother has shown signs of “sundowning,” which is a peculiar behaviour in some people with Alzheimer’s. The name is apt; when the sun disappears, the change in light can trigger confusion and agitation in the brain. I noticed this in my mother during the last months of winter. At around 6 p.m., she would start to become restless and uneasy, a bit “clingy.” I assumed it was because she didn’t want me to leave, having become dependent on me and our other caregiver. … More Lesson #15: Do Your Homework