It’s not easy to share our health woes; there’s so much stigma in our cynical society. If you whine too much, you’re a hypochondriac. If you have something incurable, it’s all in your head. If you have something really wrong with you, you shouldn’t be out in public. Stop coughing and sneezing on us! Stop blocking the aisles with your wheelchair! Stay home, why dontchya? … More Lesson #32: Damned If They Do, Damned If They Don’t
A decade ago, I had no idea what meditation was – beyond the ability to sit cross-legged on the floor with your eyes closed. That in itself is a challenge for some people. And I admit that, even after practising meditation for almost three years (daily for about one year), I still don’t know what I’m doing. But I have come to realize the benefits of this activity, despite my ineptitude. … More Lesson #24: Sit Still, Be Quiet!
I’m putting myself right out there with other family caregivers today, and admitting that I’ve been fiercely protecting my “me-time” this month… those oh-so-valuable hours when I can push away my worrying, do something positive, take time to recharge, and shrug off the heavy emotions that weigh me down daily. … More Lesson #23: Guilt, Grieving and Giving In
I became interested in Zach Anner, an up-and-coming YouTube celebrity, because of my friend Christine. She, too, lives life from a wheelchair, diagnosed with cerebral palsy at birth. Currently working on her autobiography, Christine’s memoir opens with “It was lonely being a child in a wheelchair. I was bullied.” In an online interview with Oprah, when asked to identify his biggest challenge, Zach makes a touching admission: “Figuring out that I’m worth this experience, because it’s hard for me to accept that I might deserve this.” … More Lesson #22: The Stink of Stigma
My mother has shown signs of “sundowning,” which is a peculiar behaviour in some people with Alzheimer’s. The name is apt; when the sun disappears, the change in light can trigger confusion and agitation in the brain. I noticed this in my mother during the last months of winter. At around 6 p.m., she would start to become restless and uneasy, a bit “clingy.” I assumed it was because she didn’t want me to leave, having become dependent on me and our other caregiver. … More Lesson #15: Do Your Homework
I’ve been dating an odd assortment of women for the past two years. My single friends are busy tweaking their eHarmony profiles and complaining about how hard it is to shop for lovers. I can relate; I’m looking for that perfect match, too. But the only partner I’m interested in these days is a caregiving partner. And finding that match has proven to be challenging. … More Lesson #12: The Dating Game